Hes Gone

Just letting everyone know Michael passed away on May 14th. Most of you know bc of fb but for the ones of you that dont here your sad update. ;(

Ronnie & Mandi

Hey guys! Just wanted to stop in and give a BIG congrats to Ronnie & Mandi!!
I highly encourage EVERYONE to watch the video! Its the cuttest thing ever!!

xox

Sprinkle me with PFT dust

Hey guys!!

We have clinic on Monday so Im gonna need you all to package up some of the best PFT dust you have and send it to me!
M has been crackling at night and the past 2 days he has had a productive cough.
It dont look too bad but it is darker than usual..Think coffee with alot of creamer.
TMI maybe but hey you all know this is a CF blog ;)
Im praying his numbers are atleast 80% or higher!! I would LOVE a 102% again!!

On a different note..I can not believe its November already! Yesterday was 1 year since I talked to Mrs. Anna. =( Oh how I miss her. I am dreading the 19th..No really its gonna be rough. I cant stand to see the ones I love hurt. I wish I could hug or love it all away. M always tells me if hugs could bring peace and love could cure CF he would be rich bc he could sell me for top dollar =D. Sweet in that Michael way ;)

Make sure you tell the ones you love how special they are!! Time is so very precious!

I hope you all are feeling well!

xox

Halloween Pics

Hey guys!! Hope you all had a fun and safe Halloween!! We did!

CF Update

Hey guys!!
Sorry for the lack of post.
I still read each and everyone of your blogs!!
Thank you Jessica for the check in!!

We are doing well. Theres lots and lots I wanna share with you guys!! But sadly theres 3 people that sit and wait on me to post something, anything that they can switch all around or start a massive rumor war with. Normally I dont care much about the rumors but the above said 3 people are personal people I unfortunatly will have in my life forever. So out of respect for M I keep some stuff to myself. Which sadly means I cant share it with you all..BUT soon Ill figure out a way!!

Anywho M is doing very well! A few crackles when he sleeping and some sinus crud when he first wakes up. Hes staying on top of his treatments (with much nagging) and says he feels wonderful!! Our next clinic visit is Sometime in the first week or so of November..I dont remember the exact date but its coming up none the less.
Im excited to see his PFT's and I pray that they will be as good as last time!!

In other news...
My dear friend Mallory is expecting her 1st baby!! Congrats Drew and Mal!
Slimer is still Slimer :)
Gumby is no longer alive. Slime ate his head off day before yesterday. RIP Gumby.
I have lost 50 pounds!! Woo Hoo!!
And thats pretty much everything for the past month or so.

Hope all you guys are doing wonderful!!

xoxoxox

Because I love ALOT of CFers

I voted for Emily and you should too. ! time a day for 2 weeks!! Just click HERE.

It seriously only takes like 2 seconds of your time and its for the greatest cause ever so just do it. PLEASE. Thanks =)

xoxox

Facebook

Hey guys!!
I will not be blogging much for the next few months due to some drama that needs to die down BUT I have gotten attached to alot of you and would love for you to add me on facebook!!

You can look me up by my e mail: KelleeNicoleJones@yahoo.com or by Kellee Jones.

xoxox

Change

Change is never easy.
I dont like it nor does Michael.
Im sure if Slimer could type he would also type just how much he dont like it either.

But sometimes weather we like it or not it dont change a thing.
My house and my little family are going through a major change.
And as if it was not clear we are very unhappy about it.

Please say a extra prayer.
Pray that this change goes easier than expected.
Pray that this change dont turn in to a loss.

Ive always been told when one door closes another opens.
I need that other door to open.
I need it really soon.

xox

Kori

Please pray for Kori guys. Most of you know her and know about her recent loss. She again today will have to face the emotions of loss. She found out around an hour ago that her dad has passed away. Pleas pray for a safe trip to Fl and for strength.

xox

Evidence

Let me take you to step by step through my morning.

9:02- Wake up and look at phone
9:08- Must pee so I get up
9:12- Kiss my sweet M awake
9:15- Realize I didn't fix M's pills last night for this am so I start to fix them for the next 2 weeks.
9: something. who really cares- I take M his pills with his (always full) water bottle.

Conversation starts.

M- Huh I cant believe I still have pills
K- What do you mean?
M- I have not run out yet
K- I don't understand
M- Since you know...Mom died
K- Silently thinks....

Back story..Michael's Mom re ordered his meds..it was what she did and I dare never try to take that away or take over. When she died I obviously did.

I return to the kitchen still pondering what just happen and finish emptying his old pills all into the new bottles I just received in the mail..that I just reordered. Like I have every 2 1/2 months. Since last November.
But for right now my friends I did not have the heart to say anything else.
Right now I will be the pill fairy. Just add it to my list.
If I can say so myself I'm the coolest fairy ever actually.
I'm so cool I never let things like PSP's, chargers, keys, games, wallets or shoes stay in the lost world of "but I put them right here"
I don't let dust settle very long before I swoop in (obviously invisible) and pledge it up.
The floor stays pretty darn clean.
I most always have a warm dinner on the table by 6:30
I manage to keep all favorite Ghost buster shirts clean even when he knows he just threw that in the dirty laundry basket.
And now I'm so dang awesome I manage to not let much needed medicine run completely out. Since November



Can you see her?? You know the Pill fairy??


Wanna hear the funny part?!
I look just like Kellee.
I even act like here, talk like her and nag like here.
Ha what a small world.

xox

Blog help Please

Hey guys!!
Hope you all are feeling good!
We are all good here.
M's still feeling great and Slime pot is healing SLOWLY.
Believe it or not I am the one kinda sick now..boo.
Although when one lives with, cares for, is married to or dating a CFer you cant really get sick. Atleast not in my brain. It seems as if "my throat is sore" or "my nose is stopped up" is quite trivial to "I cant breath" "Ive had 10 nose bleeds today" or "my sputum is really dark" so I just hush smile and take medicine :).
Luckily M is a smart one and picks up on the extra tissues add to the already near bout over flowing bathroom trash and takes care of me :). I love him. No really I REALLY LOVE THAT MAN.

So reason for my post and post title.
How can I look up blogs? Like say I wanted to search photography blogs.
When Im looking for new CF blogs I just click under one of you guys and in the intrest section most of you have Cystic Fibrosis and I just click that. But what Im looking for (which is not really photography I was just using that as an example) is not listed under any of yalls intrest. Leave it to me to be odd and want to read about something none of my 33 followers.
Anywho please help me if ya can!!
Thanks in advance!!

xox

Home with an update

Hi guys!!
We are home from Mexico!
We had fun and took lots of pics, but we are so glad to be back home for some rest!








Thanks for all the prayers and a extra thanks to Somer Love (I just like her whole name) for telling me about Seagate Olive Leaf Nose & Throat spray...Michael did not even have a heavy cough fit while there and still (knock on wood) he is feeling WONDERFUL...as in no problems at all!!

M's dog bite is still a hole but he says it dont hurt much at all (Thank You Jesus)
Slimer on the other hand breaks my heart...Hes pretty beat up =(









The animal control put the attack dog down and let us know he was up tp date on his shote..They have sent his body to the lab to test for any kind of disease and we should know something soon.

Thats all for the Perkins family for now.
Please keep Kori and her family in you prayers & stay well!!

xoxo

Nightmare!

I'm pretty sure today has to be a horrid dream and I just have not woke up yet.
We got up at 10 after a very long night of prepping for our Mexico trip.
All was well I was confirming plane tickets and my dear friend Jason said he was gonna walk Slimer. No big deal Slimer walks ON HIS LEASH several times a day. The neighbors love him, play with him and often feed him while he snorts, grunts and mostly passes gas. But that's not the case for today..no sir.

My phone rings and its Jason so I just opened the door to see what he needs. I see 2 of my neighbors. 1 is shooting his gun and 1 is throwing his kids bike! As I walk out I see Slimer being attacked by a huge brown dog. I also see Jason with skin and blood everywhere I went right in to spaz mode crying and shaking (OK maby I love my dog a bit more than normal but whatever) M sees whats happening and runs down the hill (while loosing my shoes in the street) to help Jason who is trying so hard to save Slimer. Gun shots, a flying rake, blood curdling screams of pain from Michael and Jason...Panic! The neighbor thought he shot M and is screaming for help..Panic!! So I call 911 answer 500 questions, M comes running up the hill..blood everywhere (keep in mind I'm married to a CFer..I normally don't panic easily and I'm used to blood and what knot) EVERYWHERE!!! Slimes bleeding, M is bleeding, Jason is bleeding its was horrid! FINALLY the ambulance gets here takes J and M in the ambulance to the er and I called a friend to take Slime to the vet.

End of the story..Jason has 15 bites and 4 puncture holes, Michael has 5 Teeth deep puncture holes and Slimer is at the vet. The vet says he should be good to come home tomorrow (he fought really hard) and the Dr's say the guys will be ok..We just have to wait and see if the dog has rabies. The family of the attack dog has not even tried to come talk to us. Slimer was on a leash and their dog was just let out freely to go "play". As you can imagine this is more than likely going to turn into a very ugly situation. Their dog has killed 2 dogs in our neighborhood already!! Animal control has picked him up and hes at the pound now to be watched for 7-10 days. Please Please pray that he has had his shots (like a good human should have done)and that Jason and Michael heal just fine. We are leaving for Mexico in a few hours and I'm so nervous about going now! I just pray all goes well! One of M's wounds is still bleeding pretty bad so if you would throw in a extra prayer for that I be oh so thankful!!

Ima miss you guys while I'm gone BUT I will be praying for you all as normal and look forward to all my catch up reading!
Stay Well!!

xoxo

Good news is better late than never!

Hey guys!!
Sorry I did not update sooner.
We have had a busy busy week! We are going to Mexico on thursday so we have been rushed getting passports and birth certificates and all this other garbage.. Anyway not important..
What is important tho is what happend when we had clinic visit on Monday..ok so Im a week late..cry for me =)
M had a bet with 2 of his CF buddies that he could blow harder so I had to make a video of his PFT's..Lucky for me it also makes a neat blog post!! Enjoy the video but minus the sarcastic hoop la aimed at M's buddies.




Thats right 102%...never in my 7 years of going to these visits has it ever been over 96% and that was only 1 time!! M's baseline is in the 70's.
Needless to say we have done lots of celebrating =)

xox

Just sayin Hi

Hey guys!
Everything is going really well here..well I mean kinda.
M is still having alot of sinus crud but we got some new nasal rinse with a antibiotic in it and it seems to help a little..we just started it yesterday but he does feel some better so Im all smiles =)
We moved his clinic appt. to this Monday at 2:00 so hopefully I can bring yall back some good numbers!!

On a very sour note..
I think most of you know Josh & Graciy but if not I encourage you to check out their blog.
Anyway tragedy has struck their family and they need all the prayers they can get.
Sorry for lack of details Im sure she will post as soon as she can.
Please please say an extra prayer for them along with the intire family..My heart really hurts for them as I can remember how awful it was for Michael & I.
Also will you please keep Kori and family in your prayers as they are facing the most difficult time so far on their already difficult journey.

XoX

Please Pray

Hey guys
Please Please pray for Josh & Graciy.
Im not gonna go into details bc I dont know if its ok yet BUT something awful has happend and they need many prayers.
Prayers for peace and understanding.

XoX
Kellee

Michael

Please say extra prayers for Michael.
Hes sick =(
Fever is 103 =( =(

About time

That I stop in and say Hi to you guys!!
I hope everyone is well.

We are all doing well.
Michael and I have been pretty in this "Our Time" mode and we have taken many small trips ALONE together, cut out alot of phone calls and text, and really just been very much into each other and each other only...How selfish..Oh well its a rare thing.

M has a cough..pretty sure its due to sinus drainage. We got the results back from his sleep study and..Get ready for this one..Im sure some of you will find it as funny as I did. The Dr. said "Your breathing is wonderful" (sure thing I thought he had cf) and then he says "I think you have some allergies" (good thing I thought he had cf) then he says "You should see a ENT doctor" (good thing thats who occupies my #4 speed dial) So in detail M stops breathing 4.2 times an hour...In order to have sleep apnea you have to stop 5 times or more. What he ended up saying was..Michael does seem to be very sleepy..It only takes him around 8 mins to fall asleep and 18-23 mins is what is considered "normal". Michael also comes out of a deep sleep 45 times in a 6 hour period and normal is 7-12. So pretty much the end answers we got was that M has "allergies" that are messing with his airways, He gets woke up alot more than the avg. person due to "coughing" and last but not least we were told that from a sleep stand point M is fine that he sleeps during the day mainly out of bordem.
Man that was a informative visit.

So we made a appointment to see one of my fav. doctors!! Dr. Swain (sinus master)
And briefly before he and M went totally in to movie and video game mode I was able to get some ?'s and answers in.
Dr S says that if M thinks he is tired due to snoring (very rare for M) that he could trim that little dangle piece in the back of his mouth (of course he had a proper name for that piece)and he also said if it dont get better through the rest of the year that he will talk to Dr. Sindel (Cf doctor) about "gutting" M's left side like he did the right a few years ago. This was M's idea...He says he has no problems on his right side that its only the left that stops up and dont "move" air.
So Swain told us that right now "the juice is not worth the squeeze" so just go home use the neil med sinus rinse followed by afrin and come in when its unbearable to get "sucked out"

So that where we are health wise. Lungs seem to be pretty good...kinda starting to crackle a tiny bit at night but we have our clinic visit in Aug so we will know more then. He has been working out a good bit so Im excited to see if his numbers go up!!

Anyways everyone else is good.
Slimer is being a sweet little monster


We attempted to make Titus an inside dog...Slimer loved it but I still dont care much for the whole peeing in the carpet thing so hes out again...He likes being outside better anyway.


And everything except Slimer thinking he is 100% human and sitting like so..is normal =)


XoX

An Angel Went Home

Death is never easy.
Ever.

My Mam~Maw went home today.
She was by far the sweetest person ever.
She was 90 and had the spirit of a 10 year old.
She would never wear her hearing aide and constantly say HUH?!
She would hide cookies under her pillow and not have a clue why her sugar was 500.
She taught me that Noxema was a girls bestfriend.
She was never without a tabloid.
Ever.
She got up every morning and put her make up on no matter what.
She feel asleep reading the paper.
She woke up and swore she was not sleeping but thought she may need a little nap.
She did not miss Wheel of fortune or Jeopardy.
Ever.
She kept her hair done and even dyed it red.
She drew on her eyebrows and they were perfect.
She saw the good in everyone but would talk about you when you took the sweets away.
She was precious.
She was funny.
She was a mess.
And she will be MISSED.

Please keep my family in your prayers for the upcoming days.
I dont think any of us were ready.

R.I.P. Mam~Maw
I ♥ U!!

Question for Cfers and movie lovers

Hey guys
I hope you all have a wonderful, safe and healthy 4th!!

Do you guys know any good movies about CF like life Breath?
No so much teaching about CF but more of like an actual movie that CF takes part in?
Thanks in advance!!

XoXo

Ahh the smell!

Hey guys!
No news is good news!
We are all doing well!
M is still having a little sinus crap going on and has yet to have a sleep study.
He has however only had 2 naps this week! Woo Hoo!

Michaels dad got 1 of the cool sleep number beds so he gave us his bed and WOW!
Its the biggest most comfortable bed EVER!!! With that being said I can go in to the title of my post.

Mrs. Anna (for new readers thats M's mom that VERY unexpectantly passed away in Nov.)
always smelled amazing! Im talking like lure you in sniffing kinda good..And not just her but the house the bedroom her car...always smelled better than anythinng I can describe. And so anyway the smell has not (Thank you God) faded. As soon as you open the front door of their house the smell hits your nose instantly. Its a comfortable thing...1 thing thats still the same. Well guess what came with our mattress? Thats right!! The wonderful smell!! Now its not always good when someone brings her up to M or something reminds him BUT like I said this is a comfort thing. Granted M can not smell now BUT he could at 1 time and he says her very much so remembers the smell and he loves knowing that our house has the sweet wonderful smell of Mrs. Anna.

Death is so odd to me..
Like I still go in and think shes gonna be there.
Why? Its been 7 months.
When will it sink in?
I sure do miss that womans cookin! Man she made some mean poppy seed chicken. Along with 50 thousand other wonderful dishes.

M deals so well with death. Its good in a way. CF plus depression is never a pretty site but its really sad that death has become such a part of him its almost like second nature. He hears about it replies and goes on about his day.
Amazing..Yes but just sad. All the more reason a cure REALLY needs to be found.

Anyway Im going to go enjoy our new smell good bed with my wonderful, amazing, funny, sarcastic M!

I hope you all are doing wonderful! And even tho Im not posting much you are ALL still very much in my prayers!!

XoX

Finally Grilling Goodness

1. What do you like most about your skin?
Umm well it turns brown pretty quick =)



2. Does your spouse mind grocery shopping for you or with you?
No M pretty much does any and everything with me and very rarely complains.
I Love Him!


3. Do you have access to a pool for the summer?
Yeppers


4. Do you have plans for Father's Day?
Umm No



5. Is there anything that terrified you as a child that you find .... now?
Umm I dont do bugs and anything that means messing with my bends.


6. If you could do something instantly, what would it be?
Cure CF


7. What would you do to entertain visitors from out of town?
They would be outta luck if I was not entertaining enough lol


8. If your best friend owes you money, do you bug them until you get it?
Nope

Sorry I have not done one of these in so long! I kinda forgot about them =(

XoX

Cf Question

Are any of you Cfers tired alot?

M will got to bed at say 10pm wake up at 10am and take a nap from 2-6 and then be ready for bed again at 10?

We still have not had his sleep study...they were booked for quite a long time.
Anyway M being sleepy so much has increasingly gotten worse and Im kind of concerned now.
Dr. S says the sleep study will tell us more but I have really never liked the whole wait and see game cf loves so much.

Xox

For the Somer Love

Hey my love!
I almost cried when you asked me what a yoohoo was.
I must share with you my most fav. quilty pleasure ever!!!!

Its not like any other and I strongly strongly encourage you to try it

Hope your all having a good day!!

Confessions

Hey guys I was tagged by this awesome blogger to join her new little thing where each week you get a new task to complete and blah blah...anyway this week was to write a post full of confessions,
Here I go

I confess that I am way way OCD
I confess that I love Michael Perkins more than anyone will ever know
I confess that I love Slimer more than any human should love a dog
I confess that I cooked dinner in the crock pot tonight and Im not washing it befor I go to bed.
I confess that I wish I saw Mallory Zafiris everyday of my life because I love her like woah.
I confess that I have the worst case of restless leg syndrome ever!
I confess I clean my ears like 5 times a day.
I confess that I look to Ronnie "runsickboyruns" post to lift me up when I am down
I confess that I miss Gracie Loo more than you know.
I confess that I cant blog about everything I want due to blog stalker.

So I think thats enough

Oh wait

WARNING!!!!!!!!! Girl talk will follow this sentence! Guys go away!

I confess that I ate 2 bags of hot peanuts followed my a strawberry yoohoo and THEN I ate a reeses..dont stop there not only did I ask for a strawberry yoohoo but I needed a choc. one 2 and a KING size kit kat...totally a fatty moment
I also confess that I asked M to go get me all of those things on a spur of the moment basis while I was crying and didnt know why.

Would anyone like to guess what time of the month it is for me?

XoX

Boys Just Wanna Have Fun!

With this post I will bring better news!
Or pictures.
Or whatever.

As you all know by now I love love love me some Michael P & Slimer.
They are 2 of the most amazing people/dog ever.

Slimer however has recently been going through a rough patch.


A Funk.



Call it a identity crisis if you will.





It seems hes not the only one with this identity issue..






Or this just possibly may be M..at Wal Mart..at mid night..dressed up as a ghostbuster..sigining a autograph




With Mallory & John.

But stranger things have happend.







And we always have a blast and thats all that matters right?

XoX

Come to my nice Cozy House?

Its been a exciting week in the Perkins home!

5 Years ago M decided he wanted a snake.
5 Years ago I was a madly in love ( not so bright ) teen with said M.
5 Years ago I bought ( yes as in PAID ) M the snake that was just so tiny and tucked away in a glass cage.

Her name is Kaa.
She has never struck or bit anyone/thing besides her food.
I have never cared much for her but never really had a problem with her either.
She lives in her glass cage locked away in another room.
To be honest I never even see her...In all honesty I may have seen her 10 times in 5 years.




In her 5 years of life she has grown to be 4ft and remained to be a "good" (HA!)snake. This is all wonderful. Just fabulous right?

Also in Kaa's 5 years of life she apparently has decided she dont like being tucked away in her nice little glass cage.

She escaped.

Yes a 4 foot snake named Kaa is loose in my house.

Where I sleep and eat and pee and laugh and preform CPT and roll in the floor with Gumby and Slimer.

Have you my friends ever tried to sit on your toilet while being completly aware of every inch around you? How about sleep 8 hours in the bed where the cover runs over your legs causing you to instantly be awake, out of bed and looking around crazily with no contacts in my friend? Oh or when you need to stick your hand down in the cabinet to get that cassarole dish for dinner? Or turn on the light switch in the dark?

Dont you all want to come visit me?

XoX

Putting it to rest

We can now all put the whole "April rose" thing to rest

http://www.azcentral.com/news/articles/2009/06/11/20090611BabyScam.html

Please remember B still needs all of our prayers

Please tell me

That my eyes are not being honest with me about little April Rose???????
Its real right?
And shes ok right?

Im hoping Im confused or have missed something big today on my blog absence.

Help!!

Hey guys!!
Nothing new going on at our house!
M is doing awesome =) ;) =D :)








Slimer is also doing fantastic






And we have a new family member
Bloggies meet Pooch take 2




Ok now for the help part!!
I need to know which cup cake is the prettiest...Im talking like wedding cup cakes!!

Cup Cake "A"


Cup Cake "B"


Cup Cake "C"


Cup Cake "D"


Cup Cake "E"


Cup Cake "F"


Cup Cake "G"


All of them






Now I need you all to let me know which you like best!!
=)

XoXo