Thursday, July 23, 2009

About time

That I stop in and say Hi to you guys!!
I hope everyone is well.

We are all doing well.
Michael and I have been pretty in this "Our Time" mode and we have taken many small trips ALONE together, cut out alot of phone calls and text, and really just been very much into each other and each other only...How selfish..Oh well its a rare thing.

M has a cough..pretty sure its due to sinus drainage. We got the results back from his sleep study and..Get ready for this one..Im sure some of you will find it as funny as I did. The Dr. said "Your breathing is wonderful" (sure thing I thought he had cf) and then he says "I think you have some allergies" (good thing I thought he had cf) then he says "You should see a ENT doctor" (good thing thats who occupies my #4 speed dial) So in detail M stops breathing 4.2 times an hour...In order to have sleep apnea you have to stop 5 times or more. What he ended up saying was..Michael does seem to be very sleepy..It only takes him around 8 mins to fall asleep and 18-23 mins is what is considered "normal". Michael also comes out of a deep sleep 45 times in a 6 hour period and normal is 7-12. So pretty much the end answers we got was that M has "allergies" that are messing with his airways, He gets woke up alot more than the avg. person due to "coughing" and last but not least we were told that from a sleep stand point M is fine that he sleeps during the day mainly out of bordem.
Man that was a informative visit.

So we made a appointment to see one of my fav. doctors!! Dr. Swain (sinus master)
And briefly before he and M went totally in to movie and video game mode I was able to get some ?'s and answers in.
Dr S says that if M thinks he is tired due to snoring (very rare for M) that he could trim that little dangle piece in the back of his mouth (of course he had a proper name for that piece)and he also said if it dont get better through the rest of the year that he will talk to Dr. Sindel (Cf doctor) about "gutting" M's left side like he did the right a few years ago. This was M's idea...He says he has no problems on his right side that its only the left that stops up and dont "move" air.
So Swain told us that right now "the juice is not worth the squeeze" so just go home use the neil med sinus rinse followed by afrin and come in when its unbearable to get "sucked out"

So that where we are health wise. Lungs seem to be pretty good...kinda starting to crackle a tiny bit at night but we have our clinic visit in Aug so we will know more then. He has been working out a good bit so Im excited to see if his numbers go up!!

Anyways everyone else is good.
Slimer is being a sweet little monster

We attempted to make Titus an inside dog...Slimer loved it but I still dont care much for the whole peeing in the carpet thing so hes out again...He likes being outside better anyway.

And everything except Slimer thinking he is 100% human and sitting like normal =)



  1. It was nice to hear from you and glad M is doing well other than the CF-thing and the coughing-thing and the sinus-thing and the sleep-thing. Or the non-sleep thing.

    I sleep just horrible. They did a sleep test last year where I wore some thing at night at home, but I wonder how accurate it was. I wake up ALL of the time - and it takes me an hour or two to fall asleep. But then I'm in meno., too. Definitely not M's problem!

    Great Slimer picture!

  2. Missed hearing from you, but no need to apologize for alone time!! When my hubby is home, it's my favorite too =)

    Also, I love the last pic of Slimer sitting on the couch. ahaha adorable!

  3. LOL I LOVE that last pic of Slimer....

  4. Just a suggestion... Look into getting a prescription for Provigil. It's a narcolepsy drug, and also used for sleep apnea. It's a rather expensive drug (my dose costs $750 a month before insurance), so doctors don't try to prescribe it. There is a long story why it is so's an example of what is wrong with drug companies. But it is a wonderful drug and there is no substitute for it. They use it in the military to keep pilots awake during missions. I don't have CF, but sleep apnea and SVT (heart arrythmia). I was sleeping like M was. My pulmonologist described me as having a "sleepy brain" known cause of my sleepiness, but not quite narcolepsy. Now, on Provigil, I sleep close to normal..about 9-10 hours a day instead of 14-16. I just thought you might need this info.

  5. Thanks for the update:) I've been thinking of you guys and how M has been;-)

  6. Hey!! Thanks for the comment, Glad you liked my blog!
    Your husband looks pretty healthy, good thing he's got him a good wife like you to keep him on track!
    Glad to see that everything is doing alright and I look forward to more blogs!

  7. I've never tried to add anything like that to Mac & Cheese, But my mom will put cream of ANYTHING in ANYTHING! lol
    It's soo good!
    One thing that I like with my mac & cheese is a whole block of cream cheese it sounds gross but its actually good, and it adds 700 calories!
    Thanks for the help I'll try adding cream of mushroom and stuff to my mac & cheese!

  8. Your profile pics shows up so dark in your comments! I miss seeing your faces!