Monday, May 18, 2009

CF update


We went to clinic today and only had to wait 2 hours to be seen =)

I am very pleased to report that M's functions are up from 55% to 81%!! His FEV1 went from 2.05 to 3.56 wooo hoooo!
All his vitals were good =) Including his pulse ox which was 96-97! He was 5'9 and a magical 183 pounds!!
Dr. S told M how pleased he was with his weight and he feels like that is a huge part in him being as healty as he is right now ;)
No med changes but he did order M a sleep study test. We are kind of concerned about how much M wants to sleep.
He all jokes aside could sleep 18-20 hours a day if he had it his way and we all know thats not good so hopefully this sleep study will let us know why hes not getting "restful" sleep.

For his birthday I got him a PKE meter..for all you non ghostbusters fan the PKE meter is something important that they use in the movie..He has been wanting the replica since I met him so I finally broke down and splurged on it. He was so happy he and now he takes it every where with him. He spent his time at clinic using it on all the people..Some of the looks were quite priceless and Dr. S has convinced M to come to his house dressed in full GB suite with all props and investigate his house just to scare his wife! The 2 of them are a mess together!! Hes an awesome doctor and I just love him!! Anyway thats my good clinc report and Ill leave you with M being his goofy self harassing the people at the doctors office today.
video
video

11 comments:

  1. That is an awesome jump in PVFs!! Also, a sleep study is a good idea. My husband just had one and is going in for a follow-up to get set up with a CPAP for mild sleep apnea (I knew it!). Hopefully that will mean better sleep for both of us!

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  2. Woohooo M! Gotta love trying to make a CE'er "fat." HA!

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  3. Tell M that I'm jealous of those PFT's! Just more motivation baby!

    Ronnie

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  4. what a cow!!! So know we were 41 pounds behind lol i think were going to have to start taking height in to acount ;0)

    he is so silly btw

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  5. YAY for good PFT's!!! That's awesome!!! And YAY for gaining weigh!! That definitely plays a role in him feeling good! I hope he keeps it up! Let me know how the sleep study goes....defintely curious! I had one scheduled once, but had to cancel it due to being sick! And I never sleep!

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  6. Ok, loved the videos! Great news! Have a wonderful weekend!

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  7. If you've gone private, i would still like to follow. My e-mail is phoenixsfight@yahoo.com

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  8. wow what a rise in pft's!! what is he taking or doing differently? that's awesome. keep up the amazing work.

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  9. wow, thanks for the update...hope that all goes well. thanks for being there for me.

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  10. Psssh. I had fun with you too! It was awesome seeing Michael run around and get some excersise into that bod of his! Love Love Love yah!

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  11. Hey so Nicks fev is in the 60s and we are really wanting to make it better what did your hubby do to improve??? I know excersising but was there anything else ?

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